People with albinism are visually handicapped and show variable alterations in pigmentation. In our first world, people with albinism can protect their skin from the sun rays, with sun creams, hats and adequate clothes. Unfortunately, in Africa, where usually sunscreens and protective clothes are not universally available, people with albinism suffer from sunburns that often develop into skin tumours and eventually to death, if not treated and removed in time. This is terrible and absolutely unnecessary and could be easily prevented, as it already happens in the first world, where people with albinism can protect their skins from sunlight and can receive support for their visual impairment, which constitutes their most important problem in their everyday’s life.
Furthermore, in some countries in Africa, people with albinism are kidnapped, hunted, killed and cut into pieces, aberrantly and stupidly used in magic rituals associated to a profound ignorance and lack of humane culture, which should be banned, prosecuted, condemned and erradicated.
Today, as the International Albinism Awareness Day, from the International Federation of Pigment Cell Societies, we would wholeheartedly appreciate if everyone of you could dedicate at least some minutes to think about the situation and problems affecting people with albinism all over the world. Joining or supporting any of the many campaigns launched today by the associations in support of people with albinism could be a fantastic first step!.
… and many more associations and initiatives in support of people with albinism!
The ESPCR supports a conference on oculocutaneous albinism in sub-saharian Africa, which will be held in Douala, Cameroon, on 24-25 July, promoted by Prof. Robert Aquaron (Honorary member of ESPCR) and Prof. Albert Mouelle (Cameroon), where a number of IFPCS members will be there presenting our research projects and scientific progress aiming to better understand albinism.
Our last paper on #albinism, a collaborative review with a proposal to explain how mutations in so many genes cause this genetic condition, it is already out in Prog. Retin. Eye Res.
@ALBA_albinismo @EuSPCR @ifpcs @NOAHAlbinism @AlbinismUK @UnAlbinism
This online event to celebrate the International #Albinism Awareness Day #IAAD2022 will also be broadcasted through the #GAA #YouTube channel. You may choose between four videos according to these four languages: English, French, Spanish and Portughese.
Today, 13 June, the Global Albinism Alliance #GAA celebrates the International #Albinism Awareness Day #IAAD2022 with an online event available in English, French, Spanish and Portughese through #Facebook
The event will begin at 10:00AM New York City time
The developmental biologist Beatrice Mintz passed on Jan 3, 2022 at the age of 100. Blanche Chapel @DukeCellBiology who worked with her, has written this obituary in @dev_journal on the professional career of this extraordinary woman in science.
Kudos to Brian Brooks and his team at @NatEyeInstitute @NIH for establishing iPS-derived retinal pigment epithelium cells from oculocutaneous (OCA1 and OCA2) #albinism patients. Study published in @stemcellreports
@ALBA_albinismo @NOAHAlbinism @HPSNetwork
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