The Board of the International Federation of Pigment Cell Societies (IFPCS) has approved to support the 4th European Days of Albinism (4EDA) meeting, to be held in Oslo (Norway) on 7-10 March 2018, with four (4) standard registrations for IFPCS members willing to attend this conference. Researchers and clinicians interested to attend this meeting who are current IFPCS members can submit their applications (brief CV and letter of intent are mandatory, abstract is optional) by January 15, 2018, to Lluis Montoliu (firstname.lastname@example.org), IFPCS Secretary and co-organizer of the 4EDA meeting, indicating in the subject of the message: application for 4EDA meeting.
Albinism is a rare genetic condition which primarily affects vision. The visual impairments of people with albinism can be associated with problems with pigmentation. For an adequate multidisciplinary approach to albinism, several professional are required, including dermatologists, ophthalmologists, hematologists, neurologists and geneticists. The same holds true for research in albinism, where geneticists, cellular biologists, molecular biologists, biochemists and neuroscientists have to investigate in a cooperative manner. The European Days of Albinism (EDA) are unique occasions for scientists and medical practitioners in charge of patients with albinism and involved in research on this condition to meet the European patients’ associations. The EDAs include scientific sessions, during which the latest advances in the field are presented and discussed, covering all aspects of the disease, from dermatology, to ophthalmology, genetics, cell biology and therapy. In parallel, the EDAs also hold a Meeting of the European Patients’ Associations. The EDAs traditionally end with a half day plenary session where delegates from the scientists and patients’ association groups share the summary of the topics that were discussed in their corresponding meetings.
After the first three extremely stimulating EDAs; held in Paris 2012, Valencia 2014 and Milan 2016, we are pleased to announce that the 4th EDA will take place at the Hurdal Vision and Activity Center, near Oslo, Norway, on March 8th-10th, 2018. The format has been extended to three days, which will leave two full days for the scientific meeting, thus allowing for more in-depth presentations and discussions of the new findings and developments in this complex field.
Another novelty is that the European patients’ associations have now formalized a Network of associations called Albinism Europe (www.albinism.eu). They rely on a scientific committee of thirteen members to both assist them with medical and scientific issues and to prepare the scientific program of the EDAs.
We are looking forward to seeing you in Norway for the 4th European Days of Albinism!
Lluis Montoliu and Benoît Arveiler, for the Scientific Committee of Albinism Europe
The next ESPCR meeting will be held in Brussels 12-14 Sep 2019, hosted by Véronique del Marmol. “A bridge between the pathology and physiology of the melanocyte” Deadline: 1st June. Great list of speakers confirmed. Please register and submit your work to be presented in Beussels
We are most pleased to announce our next Fritz Anders Lecture awardee: Marisol Soengas @msmelanoma @CNIO_Cancer for her achievements in melanoma research. She will receive a Medal and deliver the Lecture at the forthcoming ESPCR 2019 meeting in Brussels https://t.co/01NewP2tEZ
Greetings from Chicago airport, a stop on my way to Denver (Colorado) invited by Richard Spritz @CUDenver to deliver tomorrow a talk about the situation of people with #albinism in #Africa who face terrible challenges well beyond what it’s already experienced in Western countries
This is the Yamagata Terrsa, the venue for the #IPCC2020 @ifpcs conference that will be held in Yamagata, 18-21 june 2020, hosted and organized by Prof. Tamio Suzuki, Department of Dermatology of University of Yamagata. @EuSPCR https://t.co/erER82lwdk
Tamio Suzuki is a reference dermatologist in Japan, collecting and analyzing all cases of #albinism detected in this country. Tamio identified HPS3 and HPS4 genes causing Hermansky-Pudlak syndromic albinisms while he was a postdoc in Richard Spritz’s lab in Denver. @HPSNetwork
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